Patient Opinion's team blog

This is our NHS...let's make it better!

Lots of organisations that we work with welcome Patient Opinion. But some see web-based feedback more as a trial than an opportunity.  Who needs web-based feedback when you've already got surveys, CQUINS, hand helds and your own internal system of PALS and complaints? The very things that appeal to patients and the public about Patient Opinion – that it is easy to use, free,  visible to everyone,  independent, impossible to control, and full of  anecdotes – are exactly the things that these trusts and managers fear.

Understandable but the problem with looking at the world (and Patient Opinion) in this way is that it assumes that because NHS organisations have been able to control feedback in the past they will still be able to do it in a world that is being re-shaped by forces much wider than the NHS, or government policy. We are used to running an NHS in which patients interact on our terms, use our complaint procedures, fill out our questionnaires – when now, out there on the web,  everyone  is already saying exactly what they think on their own terms.

Losing control of these internal procedures feels uncomfortable but actually represents a great opportunity. As a trust it means that something that was scarce and expensive – patient feedback – has suddenly become cheap and plentiful. Yes, that means news ways of working. Yes, it means that we have to respond in public rather than use complaints procedures that are bureaucratic, private and easier to control. But it also means it is now really easy  to involve every single team in the trust in hearing what patients are saying, reflecting on what it mean for good practice, and entering into a public conversations about what they are going to do to improve things.  And that has to be a change for the better.


 Good post on the always-interesting Puffbox blog. Seems that Tom Watson the (only?) web-savvy member of the government, suggested the folks at direct.gov develop an instant site where parents could find out whether their school was closed by the snow.

The call went out last Friday – and  lo! The site was up and running 28 hours later thanks to some great work by the direct.gov team. Eat your heart out Connecting for Health.

And then a second snow flake drifts by: NESTA are organising The Lab – ‘to give people the freedom, the capital and the expertise to help them undertake radical experiments.’ Especially at a time when there is no money and economics isn’t normal any more.  So what could we come up in health…. If we had a big wand and some money, how would we at Patient Opinion contribute more snowflakes to the blizzard of innovation that we need to do old things better or new things wonderfully? Well, first off, we might sprinkle some snow flakes over the NHS  complaints procedure. Universally agreed to be miserable it desperately needs a fairy Godmother. So why not steal some of the great ideas developed within the criminal justice system around restorative justice and develop a system of restorative redress within health care? We’re itching to build an on-line complaints system built on compassion not defensiveness. And, because it would be based round the Patient Opinion platform, it might even be scalable and cheaper.  We’d also like to develop a General Public Service Improvement Licence. The General Public Licence (GPL)  holds open-source programming communities together so our proposed  GPSIL (although we must think of a snappier acronym) would do the same for public services. By providing a coherent and agreed set of values embedded in a simple licence it could release the creativity of patients, carers, staff,  consultants and service users. Especially when allied to the emerging set of on-line tools. A Creative Commons licence for improving public services.  So any Fairy Godmothers wanting to help you know how to get in touch....  

 

   

Learning from complaints?

As if by magic, after my blog post yesterday on patient complaints, today sees the release of a National Audit Office report catchily titled Feeding back? Learning from complaints handling in health and social care.

So what does it say? In a nutshell (and I quote):

There is, in particular, confusion as to how to access and navigate the complaints system; lack of public confidence in the system; concern over the time taken to respond to complaints; a failure to find a sustainable and effective independent resolution stage; and limited sharing of lessons within and across NHS bodies.

Among other highlights, the NAO found that:

  • only five per cent of people who were dissatisfied about the NHS went on to make a formal complaint
  • few trusts capture and report data on complaints in a systematic way
  • a fifth of complainants reaching the Healthcare Commission stage simply wanted "an apology or recognition of the event"
  • only one third of complainants considered that the organisations they had complained about had demonstrated that lessons had been learned as a result
  • in many cases trusts had genuinely learned from complaints but did not tell the complainant

Hmmm... all this feels entirely consistent with yesterday's conclusions. Can Patient Opinion help with all of this? Yes, I think we can.


About my complaint, doctor...

A rather depressing posting arrived on the Patient Opinion site today.

A sentence near the end sums it up rather well: "How do I complain about the waste-of-time complaints procedure?"

The posting reminded me that the Patients Association had recently published their report NHS Complaints: who cares? who can make it better? So I went off to read it and see how typical this contributor's experience might be.

The Patients Association surveyed 1500 patients for its report, of whom fewer than 500 responded, so there is plenty of room for bias. But one finding caught my eye: of those with experience of using the NHS complaints system, 20% had found the process "pointless" and almost a further 30% had found it "totally pointless". By contrast, about 13% had found it "useful" and a further 2% "very useful".

There is quite a strong message here. Whatever it is that patients are trying to achieve through the complaints system, it evidently fails to deliver for a large proportion. But what are patients trying to achieve?

The report's findings suggest that a large proportion of patients want the system to:

  • make sure everyone learns from a mistake
  • ensure it doesn't happen to other people
  • ensure patient's views are heard in the future
  • change clinical behaviour

Interestingly, this fits exactly with our own experience at Patient Opinion. Sometimes a hospital will contact us about a critical posting on our site. "Can you remove it?" they say, "and ask the patient to make a complaint instead?" We don't remove it (of course), but we will email the patient in confidence to ask if they would like to make a complaint. And in every case to date, the patient has replied: "No, I don't want to make a complaint. I'm not trying to get anyone into trouble. I just want the problem fixed so it doesn't happen to anyone else."

Reflecting on this, a series of vague but insistent thoughts are beginning to form:

  • Is the number of complaints in the NHS driven by the lack of alternative ways to feed in one's experience?
  • Do hospitals drive people towards the complaints process because it is the only institutional system available?
  • If other systems were available (you can see where I'm going here) which offered the possibility of being heard, helping people to learn, and making a difference to the service, would patients prefer that to the existing complaints system?
  • And what would need to happen (in any system) for the majority of people to say that the process had been "useful" rather than "pointless"?

I might as well be blunt: could Patient Opinion help hospitals move towards a triple benefit: fewer complaints, greater learning from experience, and happier patients? I think we should find out!